Assessment and significance of long-term outcomes in pediatric surgery
Hanneke IJsselstijn1, Saskia J Gischler1, René M H Wijnen1
1Department of Pediatric Surgery and Intensive Care, Erasmus MC-Sophia Children's Hospital, Sk 1280, Wytemaweg 80, Rotterdam NL-3015 CN, The Netherlands.
Insights
Improved survival for newborns with anatomical congenital anomalies necessitates long-term multidisciplinary follow-up. This ensures better neurodevelopmental outcomes and societal participation for these children.
Area of Science:
- Pediatrics
- Developmental Biology
- Public Health
Background:
- Advances in treatment have increased survival rates for newborns with anatomical congenital anomalies.
- These children face unique long-term health challenges beyond their primary condition.
- Neurodevelopmental issues and educational difficulties can impact long-term societal integration.
Purpose of the Study:
- To review essential domains for long-term follow-up of patients with anatomical congenital anomalies.
- To highlight the significance of structured, multidisciplinary care programs.
- To discuss strategies for improving care transition from childhood to adulthood.
Main Methods:
- Literature review focusing on long-term outcomes and follow-up methodologies.
- Analysis of disease-specific morbidities and neurodevelopmental risks.
- Discussion of care improvement strategies including transition, risk stratification, and collaboration.
Main Results:
- Children with anatomical congenital anomalies are at risk for impaired neurodevelopment and school failure.
- Long-term multidisciplinary follow-up programs are crucial for addressing these risks.
- Effective care requires focus on transition, risk stratification, and multicenter collaboration.
Conclusions:
- Long-term multidisciplinary follow-up is essential for optimizing outcomes in children with anatomical congenital anomalies.
- Improving care necessitates a focus on the transition from pediatric to adult services.
- Future efforts should prioritize multicenter collaboration and refined risk stratification for enhanced patient management.
Abstract:
Treatment modalities for newborns with anatomical congenital anomalies have greatly improved over the past decades, with a concomitant increase in survival. This review will briefly discuss specific long-term outcomes to illustrate, which domains deserve to be considered in long-term follow-up of patients with anatomical congenital anomalies. Apart from having disease-specific morbidities these children are at risk for impaired neurodevelopmental problems and school failure, which may affect participation in society in later life. There is every reason to offer them long-term multidisciplinary follow-up programs. We further provide an overview of the methodology of long-term follow-up, its significance and discuss ways to improve care for newborns with anatomical congenital anomalies from childhood into adulthood. Future initiatives should focus on transition of care, risk stratification, and multicenter collaboration.
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