Related Experiment Video

Updated: Feb 19, 2026

Assessing the Coherence of Parents' Short Narratives Regarding their Child Using the Five-Minute Speech Sample Procedure
07:56

Assessing the Coherence of Parents' Short Narratives Regarding their Child Using the Five-Minute Speech Sample Procedure

Published on: September 19, 2019

10.9K

[The Need for Psychosocial Support in Parents of Chronically Ill Children]

Lydia Morgenstern1, Mira Wagner1, Jonas Denecke2

  • 1Universitätsklinikum Hamburg-Eppendorf Klinik für Kinder- und Jugendpsychiatrie, -psychotherapie und -psychosomatik Martinistraße 52 20246 Hamburg Deutschland UKE - Kinder- und Jugendpsychiatrie.

Praxis Der Kinderpsychologie Und Kinderpsychiatrie
|November 8, 2017
PubMed

Insights

Parents of chronically ill children need tailored psychosocial support. Flexible, family-centered programs are essential for addressing diverse needs and improving well-being for these families.

Area of Science:

  • Pediatrics
  • Psychology
  • Family Medicine

Background:

  • Childhood chronic illnesses present unique challenges for families.
  • Severe and rare diseases, especially those with high healthcare needs or progressive prognoses, strain family resources.
  • Understanding parental perspectives on support is crucial for effective interventions.

Purpose of the Study:

  • To evaluate the demand for psychological, nursing, legal, and organizational support for parents of chronically ill children.
  • To identify parental needs, goals, and expectations regarding support services.
  • To inform the development of family-centered psychosocial support programs.

Main Methods:

  • Qualitative content analysis using Mayring's method.
  • Evaluation of data from 96 parents of 68 chronically ill children.
  • Focus on parent perspectives to assess support needs.

Main Results:

  • Parents express a significant need for psychosocial support.
  • Parental needs, goals, and ideas for support are highly varied.
  • Family-based psychosocial support programs are consistently viewed as beneficial.

Conclusions:

  • Tailored, flexible psychosocial interventions are recommended for families with chronically ill children.
  • Support programs should adapt to individual family circumstances and diverse needs.
  • Addressing the multifaceted needs of these families is paramount for their well-being.

Keywords:
Elternchronically ill childrenchronisch kranke Kinderfamilienorientierte Unterstützungfamily based interventionparentsqualitative Forschungqualitative research

More Related Videos

Using a Murine Model of Psychosocial Stress in Pregnancy as a Translationally Relevant Paradigm for Psychiatric Disorders in Mothers and Infants06:39

Using a Murine Model of Psychosocial Stress in Pregnancy as a Translationally Relevant Paradigm for Psychiatric Disorders in Mothers and Infants

Published on: June 13, 2021

3.8K

Related Concept Videos

Nephrotic Syndrome III : Nursing Management01:24

Nephrotic Syndrome III : Nursing Management

Nursing management for nephrotic syndrome adapts as the disease progresses, with strategies evolving to address advancing symptoms and complications.Early-Stage Management In the early stages, nursing interventions for nephrotic syndrome resemble those used in managing acute glomerulonephritis, focusing on symptom monitoring, fluid balance, and managing mild to moderate edema.Vital Signs: Regularly monitor blood pressure, pulse, respiratory rate, and temperature to promptly identify...
358
Psychological and Sociocultural Causes of Schizophrenia01:29

Psychological and Sociocultural Causes of Schizophrenia

Schizophrenia, a complex psychiatric disorder, has been historically misunderstood. Early psychological theories attributed its origins to childhood trauma and unresponsive parenting. However, contemporary research largely rejects these notions, favoring the vulnerability-stress hypothesis. This model proposes that individuals with a genetic predisposition to schizophrenia may develop the disorder following exposure to significant environmental stressors. Notably, studies on high-risk...
666
Socioemotional Development during Infancy01:30

Socioemotional Development during Infancy

Socio-emotional development in infancy is primarily shaped by early emotional responses and social connections, with temperament playing a central role. Temperament refers to the consistent patterns in an individual's emotional and behavioral responses, observable even in infancy. By examining temperament, researchers can better understand an infant's unique ways of interacting with the world, influencing subsequent personality and socio-emotional growth.
Primary Temperament Types
664
Relationship with Parents: Attachment01:28

Relationship with Parents: Attachment

Parent-child interactions lay the foundation for how we understand relationships throughout life. These interactions are not uniform across families; instead, they are shaped by a range of environmental, emotional, and behavioral factors unique to each caregiver-child dynamic. Social psychologists study these early relationships to understand how patterns formed in infancy influence social functioning and interpersonal behavior in adulthood.Attachment Theory and Early Relational ModelsJohn...
275
Stress Prevention and Stress Management Techniques V01:28

Stress Prevention and Stress Management Techniques V

A social support system is a structured network of personal relationships that provides assistance to individuals facing various challenges, offering a buffer against psychological and physical stressors. This network may consist of family members, friends, neighbors, colleagues, or other community members who provide resources and companionship. Social support can take many forms, including advice, emotional comfort, practical help, and companionship. Research indicates that these networks can...
304
Erikson's Theory on Socioemotional Development during Childhood01:28

Erikson's Theory on Socioemotional Development during Childhood

Erik Erikson, a stage theorist, adapted Freud's theory to emphasize social factors in personality development throughout life, a concept known as psychosocial development. Unlike Freud, who focused on early childhood, Erikson believed that personality evolves across eight life stages, each marked by a specific challenge or "crisis." Successful resolution of each stage fosters competence, while failure may lead to feelings of inadequacy.
The first four of Erikson's eight...
1.3K