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Published on: June 9, 2023
Survey on Paediatric Differentiated Thyroid Cancer Care in Europe
Bernadette L Dekker1, Kate L Newbold2, Dagmar Führer3
1Department of Endocrinology, University of Groningen, University Medical Center Groningen, Groningen, the Netherlands.
Insights
Paediatric thyroid cancer management varies across Europe, highlighting the need for international collaboration. A European network is essential to optimize treatment and improve outcomes for childhood thyroid cancer survivors.
Area of Science:
- Pediatric Endocrinology
- Oncology
- Public Health Policy
Background:
- Thyroid cancer in children is rare but associated with significant treatment morbidity.
- Optimizing management for pediatric thyroid cancer requires international cooperation.
- The 2016 European Thyroid Association-Cancer Research Network (ETA-CRN) meeting focused on this patient group.
Purpose of the Study:
- To provide an overview of pediatric thyroid cancer care across European countries.
- To identify variations in treatment and organization of care.
- To advocate for enhanced European collaboration.
Main Methods:
- A survey was conducted using questionnaires.
- Data collected focused on treatment protocols and care organization.
- The study inventoried current practices in European countries.
Main Results:
- Paediatric thyroid cancer treatment is fragmented across Europe.
- Centralization of care is limited.
- Significant differences exist in treatment and follow-up protocols among European nations.
Conclusions:
- A collaborative European network is crucial for optimizing treatment.
- Minimizing long-term consequences for survivors necessitates coordinated efforts.
- The ETA-CRN supports establishing a European network for this rare endocrine cancer.
Background/Aims:
Thyroid cancer among children is a very rare disease. Although survival is favourable, morbidity caused by the treatment remains considerable, so there is a great need to optimize management by international cooperation. For this reason, the 2016 European Thyroid Association-Cancer Research Network (ETA-CRN) meeting in Copenhagen, Denmark, paid considerable attention to this topic and aimed to give an overview of the care for this paediatric patient group in different European countries.
Methods:
An inventory of data on thyroid cancer treatment among children in Europe was generated by questionnaires focused on treatment and organization of care.
Results:
The treatment of paediatric thyroid cancer appears to be scattered in each European country with limited centralization of care, and different European countries use different treatment and follow-up protocols.
Conclusion:
Collaboration in a European network to optimize treatment and minimize long-term consequences for paediatric thyroid cancer survivors is necessary. During this meeting, the ETA-CRN has endorsed the initiative to collaborate on this rare endocrine cancer within a European network.
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