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Creation of a professional network to improve spina bifida care: Argentina case
Gastón Valverde Lyons1, Carol Burek2, Liliana Campmani2
1Maternal and Child Health Department, Hospital Universitario Austral, Pilar, Buenos Aires, Argentina.
Abstract:
The purpose of this paper is to render an account of the experience of a group of healthcare providers and to propose innovative solutions for patients with Spina Bifida (SB) in Argentina. Based on our practice, patients reach specialists too late (40% already undergoing chronic kidney disease stage 1). However, several strategies were implemented in order to reverse this trend, among which were: the setting up of a professional network (via emails and Google groups), team training at different locations, videoconferences, and calling the Ministry of Health to action. Additionally, we developed a project through telemedicine to inform patients and empower caregivers throughout Argentina.
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