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Patient-centred outcomes research: perspectives of patient stakeholders
Sumedha Chhatre1, Joseph J Gallo2,3, Marsha Wittink4
1Department of Psychiatry, Perelman School of Medicine, University of Pennsylvania, Philadelphia 19104, USA.
Objective:
To elicit patient stakeholders' experience and perspectives about patient-centred care.
Design:
Qualitative.
Setting:
A large urban healthcare system.
Participants:
Four patient stakeholders who are prostate cancer survivors.
Main Outcome Measures:
Experience and perspectives of patient stakeholders regarding patient-centred care and treatment decisions.
Results:
Our patient stakeholders represented a diverse socio-demographic group. The patient stakeholders identified engagement and dialogue with physicians as crucial elements of patient-centred care model. The degree of patient-centred care was observed to be dependent on the situations. High severity conditions warranted a higher level of patient involvement, compared to mild conditions. They agreed that patient-centred care should not mean that patients can demand inappropriate treatments.
Conclusions:
An important attribute of patient-centred outcomes research model is the involvement of stakeholders. However, we have limited knowledge about the experience of patient stakeholders in patient-centred outcomes research. Our study indicates that patient stakeholders offer a unique perspective as researchers and policy-makers aim to precisely define patient-centred research and care.
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