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Should Health Care Organizations Use Information Gleaned from Organization-Sponsored Patient Support Groups in
1An associate professor and the chair of the Department of Health Informatics and Administration in the College of Health Sciences at the University of Wisconsin, Milwaukee, where she is also the founder and director of Social Media and Health Research & Training Lab.
Abstract:
Online forums and partnerships with patients have several benefits, such as the creation of new products and services. However, as with any such initiatives, there are risks as well as benefits. Through analysis of a case of misinformation being spread through a health care provider-sponsored online support group for patients dealing with obesity, this article outlines best practices and strategies to deploy in such organization-sponsored patient support groups. These strategies would enable organizations and patients to use such forums to the fullest extent while preventing or managing their potential risks as best as possible.
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