Chang Gung Research Database: A multi-institutional database consisting of original medical records

Ming-Shao Tsai1, Meng-Hung Lin2, Chuan-Pin Lee2

  • 1Department of Otolaryngology - Head and Neck Surgery, Chang Gung Memorial Hospital, Chiayi, Taiwan; Center of Excellence for Chang Gung Research Datalink, Chang Gung Memorial Hospital, Chiayi, Taiwan.

Biomedical Journal
|November 29, 2017
PubMed

Insights

The Chang Gung Research Database (CGRD) offers high coverage of Taiwan

Area of Science:

  • Medical Informatics
  • Health Services Research
  • Epidemiology

Background:

  • The Chang Gung Research Database (CGRD) is a de-identified dataset from Chang Gung Memorial Hospital (CGMH) in Taiwan.
  • CGMH is a large healthcare system with high-quality clinical research potential.
  • Previous analyses of the CGRD's research utility and population coverage were lacking.

Purpose of the Study:

  • To analyze the characteristics of the Chang Gung Research Database (CGRD).
  • To determine the population coverage of the CGRD within Taiwan.
  • To assess the CGRD's representativeness compared to national health data.

Main Methods:

  • A nationwide cohort study utilizing the Taiwan National Health Insurance Research Database (NHIRD).
  • Inclusion of all patients with outpatient or inpatient records from 1997 to 2010.
  • Analysis of demographic, socioeconomic, urbanicity, illness severity, and disease prevalence data.

Main Results:

  • The CGRD population differs in sex ratio, age, socioeconomic status, and urbanicity from national data (p < 0.05).
  • CGRD exhibits significantly higher comorbidity severity and disease prevalence than NHIRD and other medical centers (p < 0.05).
  • Overall CGRD coverage reached 21.2% for outpatients and 12.4% for inpatients, with disease-specific coverage ranging from 14-34%.

Conclusions:

  • The CGRD is a valuable multi-institutional research database with substantial population and disease-specific coverage in Taiwan.
  • The CGRD population represents a sicker cohort with a higher prevalence of specific diseases compared to national health insurance data.
Abstract

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