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Published on: June 29, 2019
Making and working of a new electronic resource for patients, carers and professionals: maxfacts.uk
D A Mitchell1, A Sebald2, L Tomasello3
1York Cross-Disciplinary Centre for Systems Analysis (YCCSA), University of York, Heslington YO10 5GE, UK.
Abstract:
Many maxillofacial patients have serious short, medium, or long-term problems, as well as having to make informed decisions about often life-changing interventions. Validated comprehensive information, at the right time and the right level for a diverse group of users (patients, carers, and professionals), is vital if patients are to make a serious contribution to their treatment. We describe the development of an online resource for this purpose. Maxfacts.uk aims to cover every aspect of oral and maxillofacial surgery and care, from neck dissection and ballistic wounds to physiotherapy and texture-modified foods. The principles of design, and the multilayered structure, interface, and functions of such a multiuser website are outlined, including accessibility and engagement. The maxfacts model and design could easily be adapted for other users with similar, complex, long-term needs.
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