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Perceptions on the value of bodily functions in multiple sclerosis.

C Heesen1,2, R Haase3, S Melzig3

  • 1Institut für Neuroimmunologie und Multiple Sklerose, Universitätsklinikum Hamburg-Eppendorf, Hamburg, Germany.

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|December 6, 2017
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Summary

Physicians and patients with multiple sclerosis (MS) differ in valuing bodily functions. Patients prioritize vision, thinking, and memory, while physicians emphasize mobility and cognitive function, highlighting a gap in recognizing visual impairment.

Keywords:
bodily functionsmultiple sclerosispatient perspectivephysician perspectivequality of life

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Area of Science:

  • Neurology
  • Rehabilitation Medicine
  • Patient-Reported Outcomes

Background:

  • Multiple Sclerosis (MS) presents diverse symptoms, making bodily function valuation crucial for clinical management.
  • Understanding patient and physician perceptions of bodily function importance in MS is limited.

Purpose of the Study:

  • To compare patient and physician perceived values of various bodily functions in individuals with relapsing-remitting multiple sclerosis (RRMS).
  • To identify discrepancies in prioritizing functions between patients and their physicians.

Main Methods:

  • A multicenter study followed 171 RRMS patients and their physicians for up to 3 years.
  • Yearly, patients and physicians rated the importance of 13 bodily functions using a priority list.
  • Analyses examined differences between patient and physician ratings and the influence of disease demographics.

Main Results:

  • Patients ranked visual function highest, followed by thinking/memory and walking; physicians prioritized mobility, thinking/memory, and alertness.
  • Significant differences emerged for swallowing (valued more by patients) and hand function (valued more by physicians).
  • Patients equally valued physical and mental functioning, whereas physicians emphasized physical functioning.

Conclusions:

  • Discrepancies exist between patient and physician value judgments regarding bodily functions in MS.
  • Physicians appear to under-recognize the importance of visual functioning for MS patients.