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The Multiple Sclerosis Performance Test MSPT: An iPad-Based Disability Assessment Tool
Published on: June 30, 2014
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Perceptions on the value of bodily functions in multiple sclerosis.
C Heesen1,2, R Haase3, S Melzig3
1Institut für Neuroimmunologie und Multiple Sklerose, Universitätsklinikum Hamburg-Eppendorf, Hamburg, Germany.
Acta Neurologica Scandinavica
|December 6, 2017
Summary
Physicians and patients with multiple sclerosis (MS) differ in valuing bodily functions. Patients prioritize vision, thinking, and memory, while physicians emphasize mobility and cognitive function, highlighting a gap in recognizing visual impairment.
Area of Science:
- Neurology
- Rehabilitation Medicine
- Patient-Reported Outcomes
Background:
- Multiple Sclerosis (MS) presents diverse symptoms, making bodily function valuation crucial for clinical management.
- Understanding patient and physician perceptions of bodily function importance in MS is limited.
Purpose of the Study:
- To compare patient and physician perceived values of various bodily functions in individuals with relapsing-remitting multiple sclerosis (RRMS).
- To identify discrepancies in prioritizing functions between patients and their physicians.
Main Methods:
- A multicenter study followed 171 RRMS patients and their physicians for up to 3 years.
- Yearly, patients and physicians rated the importance of 13 bodily functions using a priority list.
- Analyses examined differences between patient and physician ratings and the influence of disease demographics.
Main Results:
- Patients ranked visual function highest, followed by thinking/memory and walking; physicians prioritized mobility, thinking/memory, and alertness.
- Significant differences emerged for swallowing (valued more by patients) and hand function (valued more by physicians).
- Patients equally valued physical and mental functioning, whereas physicians emphasized physical functioning.
Conclusions:
- Discrepancies exist between patient and physician value judgments regarding bodily functions in MS.
- Physicians appear to under-recognize the importance of visual functioning for MS patients.
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