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Supportive palliative care should be integrated into routine care for paediatric patients with life-limiting kidney

Julia Thumfart1, Tobias Reindl2,3, Cornelia Rheinlaender3

  • 1Department of Pediatric Nephrology, Charité - Universitätsmedizin Berlin, Berlin, Germany.

Acta Paediatrica (Oslo, Norway : 1992)
|December 9, 2017
PubMed

Insights

Palliative care is essential for children and adolescents with chronic kidney disease (CKD). Early integration into routine nephrology care and family support is necessary and feasible for better outcomes.

Area of Science:

  • Pediatric Nephrology
  • Palliative Care Medicine
  • Chronic Kidney Disease Management

Background:

  • Paediatric palliative care has expanded beyond cancer to include chronic conditions like cystic fibrosis and neuromuscular disorders.
  • Chronic kidney disease (CKD) presents unique challenges for pediatric patients and their families, necessitating specialized supportive care.
  • The integration of palliative care into the management of pediatric CKD remains an evolving area of focus.

Purpose of the Study:

  • To review the current literature on palliative care for children and adolescents with CKD.
  • To explore the role of palliative care in decision-making processes for pediatric CKD patients.
  • To assess the feasibility and necessity of implementing palliative care into routine CKD management.

Main Methods:

  • A comprehensive literature search was conducted on palliative care for pediatric CKD.
  • The review focused on studies published up to August 2017, with a predominance of recent publications.
  • Analysis of existing literature to identify key themes and recommendations for palliative care integration.

Main Results:

  • Palliative care is increasingly recognized as vital for pediatric patients with chronic conditions, including CKD.
  • Early palliative care, as part of supportive kidney care by nephrology teams, is deemed necessary and achievable.
  • Specialized palliative care team involvement is crucial for complex cases, including those with comorbidities, conservative treatment, or acute complications.

Conclusions:

  • Supportive palliative care should be integrated into the routine management of pediatric patients with life-limiting kidney disease.
  • Early and ongoing palliative care enhances decision-making and family support for children with CKD.
  • Further research and guidelines are needed to optimize palliative care delivery for this population.

Keywords:
Chronic kidney diseaseDialysisEnd-stage renal diseaseKidney supportive carePaediatric palliative care

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