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A systematic review of patient-reported outcome measures in paediatric otolaryngology
J Powell1, S Powell1, A Robson2
1Department of Paediatric Otolaryngology,Great North Children's Hospital,Newcastle upon Tyne,UK.
Insights
Patient-reported outcome measures (PROMs) are increasingly used to assess patient health. A review of pediatric otolaryngology literature found many PROMs, highlighting a need for standardization.
Area of Science:
- Pediatric Otolaryngology
- Health Outcomes Research
Background:
- Growing emphasis on patient-reported outcome measures (PROMs) to capture patient perspectives on illness and interventions.
- Increased availability of questionnaires for assessing health outcomes.
- Particular importance of selecting appropriate PROMs for pediatric populations.
Purpose of the Study:
- To review the literature on patient-reported outcome measures (PROMs) utilized in pediatric otolaryngology.
- To identify existing PROMs for assessing health in children within otolaryngology.
Main Methods:
- Comprehensive literature search across Medline, Embase, CINAHL, and PsycInfo databases.
- Keywords included 'patient reported outcome measures', 'PROM', 'quality of life', 'children', and 'otolaryngology'.
- Limited search to English-language articles published between 1996 and 2016.
Main Results:
- The search identified 656 articles, with 63 deemed relevant to the study.
- Relevant articles included general pediatric PROMs applied to otolaryngology.
- Disease-specific PROMs for pediatric otolaryngology conditions were also identified.
Conclusions:
- A substantial number of patient-reported outcome measures are documented in pediatric otolaryngology research.
- Standardization of PROMs in this field is needed.
- Increased standardization would facilitate data pooling and enhance the validation of assessment tools.
Background:
Recently, there has been increased emphasis on the development and application of patient-reported outcome measures. This drive to assess the impact of illness or interventions, from the patient's perspective, has resulted in a greater number of available questionnaires. The importance of selecting an appropriate patient-reported outcome measure is specifically emphasised in the paediatric population. The literature on patient-reported outcome measures used in paediatric otolaryngology was reviewed.
Methods:
A comprehensive literature search was conducted using the databases Medline, Embase, Cumulative Index to Nursing and Allied Health Literature, and PsycInfo, using the terms: 'health assessment questionnaire', 'structured questionnaire', 'questionnaire', 'patient reported outcome measures', 'PROM', 'quality of life' or 'survey', and 'children' or 'otolaryngology'. The search was limited to English-language articles published between 1996 and 2016.
Results:
The search yielded 656 articles, of which 63 were considered relevant. This included general paediatric patient-reported outcome measures applied to otolaryngology, and paediatric otolaryngology disease-specific patient-reported outcome measures.
Conclusion:
A large collection of patient-reported outcome measures are described in the paediatric otolaryngology literature. Greater standardisation of the patient-reported outcome measures used in paediatric otolaryngology would assist in pooling of data and increase the validation of tools used.
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