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Published on: June 6, 2020
WHO Parents Skills Training (PST) programme for children with developmental disorders and delays delivered by Family
S U Hamdani1, P Akhtar1, Zill-E-Huma1
1Human Development Research Foundation, Islamabad, Pakistan.
Insights
This study evaluated a parent skills training program for children with developmental delays in Pakistan, delivered by family volunteers using a tablet-based app. The program showed promise for improving child functioning and implementation in low-resource settings.
Area of Science:
- Global child mental health
- Developmental pediatrics
- Public health interventions
Background:
- Developmental disorders and delays are a global public health priority, included in the WHO mental health gap action programme (mhGAP).
- Parent Skills Training (PST) is a recommended intervention for these conditions, but scalable delivery remains a challenge.
- This study focuses on adapting and implementing the WHO PST program in rural Pakistan.
Purpose of the Study:
- To evaluate the effectiveness of a locally adapted WHO PST program delivered by family volunteers.
- To assess the scaled-up implementation of this evidence-based intervention in a low-resource setting.
- To explore the integration of technological and social innovations for sustainable public mental health delivery.
Main Methods:
- A two-arm, single-blind, effectiveness-implementation-hybrid cluster randomized controlled trial involving 540 parent-child dyads.
- Intervention: WHO PST delivered by family volunteers via an Android application on a tablet.
- Primary outcome: Child's functioning (WHODAS-Child) at 6 months. Secondary outcomes: social communication, emotional well-being, parental quality of life, family empowerment, and stigmatizing experiences.
Main Results:
- The study is designed to measure the impact of the PST program on child functioning and other key outcomes.
- Implementation outcomes will be collected using mixed methods to assess feasibility and scalability.
- Results will inform the potential for widespread adoption of this intervention model.
Conclusions:
- The study integrates evidence-based interventions with social, technological, and business innovations to address real-world implementation challenges.
- Successful outcomes could lead to scaled-up implementation of evidence-based mental health packages in low-resource settings.
- This research contributes to improving access to care for children with developmental disorders globally.
Background:
Development disorders and delays are recognised as a public health priority and included in the WHO mental health gap action programme (mhGAP). Parents Skills Training (PST) is recommended as a key intervention for such conditions under the WHO mhGAP intervention guide. However, sustainable and scalable delivery of such evidence based interventions remains a challenge. This study aims to evaluate the effectiveness and scaled-up implementation of locally adapted WHO PST programme delivered by family volunteers in rural Pakistan.
Methods:
The study is a two arm single-blind effectiveness implementation-hybrid cluster randomised controlled trial. WHO PST programme will be delivered by 'family volunteers' to the caregivers of children with developmental disorders and delays in community-based settings. The intervention consists of the WHO PST along with the WHO mhGAP intervention for developmental disorders adapted for delivery using the android application on a tablet device. A total of 540 parent-child dyads will be recruited from 30 clusters. The primary outcome is child's functioning, measured by WHO Disability Assessment Schedule - child version (WHODAS-Child) at 6 months post intervention. Secondary outcomes include children's social communication and joint engagement with their caregiver, social emotional well-being, parental health related quality of life, family empowerment and stigmatizing experiences. Mixed method will be used to collect data on implementation outcomes. Trial has been retrospectively registered at ClinicalTrials.gov (NCT02792894).
Discussion:
This study addresses implementation challenges in the real world by incorporating evidence-based intervention strategies with social, technological and business innovations. If proven effective, the study will contribute to scaled-up implementation of evidence-based packages for public mental health in low resource settings.
Trial Registration:
Registered with ClinicalTrials.gov as Family Networks (FaNs) for Children with Developmental Disorders and Delays. Identifier: NCT02792894 Registered on 6 July 2016.
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