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The psychosocial themes of children with a congenital heart defect

Ronél van der Watt1, Carina Pheiffer1, Stephen Brown2

  • 1a Department of Psychology , University of the Free State , Bloemfontein , South Africa.

Journal of Child and Adolescent Mental Health
|December 15, 2017
PubMed

Insights

Children with congenital heart defects (CHDs) have unique experiences that impact their lives. Understanding their perceptions is crucial for their psychosocial well-being and acceptance of living with CHD.

Area of Science:

  • Pediatric Cardiology
  • Developmental Psychology
  • Child Health

Background:

  • Congenital heart defects (CHDs) significantly impact children's biological, psychological, and social functioning.
  • The subjective experiences, or 'stories in sound,' of children with CHDs are often overlooked.
  • A comprehensive understanding of these experiences is vital for effective healthcare.

Purpose of the Study:

  • To explore the 'stories in sound' of children diagnosed with congenital heart defects (CHDs).
  • To understand children's perceptions of their cardiac diagnoses and post-operative status.
  • To investigate the psychosocial implications of living with CHD.

Main Methods:

  • Qualitative, exploratory, descriptive study.
  • Thematic analysis of semi-structured interviews.
  • Developmental psychopathology model (DPM) as a conceptual framework.

Main Results:

  • Five main themes emerged: understanding of diagnosis, post-operative perceptions, psychological experiences, social functioning impacts, and relationship with the chronic condition.
  • Thirteen subthemes were identified within these main themes.
  • Children's perceptions significantly influence their psychosocial experiences and acceptance of CHD.

Conclusions:

  • Age-appropriate understanding of CHD and post-operative status is essential for children.
  • Children's perceptions are critical for their psychosocial adjustment and acceptance of living with CHD.
  • Comprehensive support from healthcare professionals is necessary for children with CHD.

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