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Revisiting New Zealand's "Unfortunate Experiment": Is medical ethics ever a thing done?
1Adjunct Professor, Department of Bioethics, Dalhousie University, PO Box 15000, Halifax, B3H 4R2 CANADA., Sharon.Batt@dal.ca.
Abstract:
An experiment dating from the 1960s in New Zealand has eerie similarities to research begun in 1976 in India. In both cases, women with evidence of early cervical cancer or pre-cancer went untreated, despite known treatments that could have prevented their condition from worsening. This Comment on carcinoma cervix research grew out of my reading of a new book by Ronald W Jones about the New Zealand experiment. Jones, a recently retired obstetrician/gynaecologist, worked at the hospital where the controversial research took place and was a whistleblower in the case. His book provides a meticulous account of internal struggles within the hospital over what has been called "the unfortunate experiment." Readers might fairly ask whether a detailed examination of a decades-old research scandal in New Zealand can usefully inform ethics debate in India today, where conditions are so different. I argue that Jones's account does indeed provide valuable insights for understanding research wrongdoing in other contexts, including low-income countries. Jones challenges some widespread assumptions about why such cases occur and how to combat them, as do several other recent analyses of research scandals.
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