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Published on: February 23, 2024
Parental presence or absence during paediatric burn wound care procedures
Marthe R Egberts1, Alette E E de Jong2, Helma W C Hofland3
1Association of Dutch Burn Centres, P.O. Box 1015, 1940 EA Beverwijk, The Netherlands; Department of Psychology, Utrecht University, P.O. Box 80140, 3508 TC Utrecht, The Netherlands.
Insights
Parents prefer to be present during their child's burn wound care, finding it helps them cope. Professionals can support parents by assessing their needs and abilities during this distressing process.
Area of Science:
- Pediatric burn care
- Psychosocial aspects of childhood illness
Background:
- Parental presence during pediatric wound care is controversial.
- Limited understanding of parents' lived experiences during burn wound care.
Purpose of the Study:
- To describe and explain parents' experiences of being present or absent during their child's burn wound care.
- To develop a model of parental experiences to inform clinical practice.
Main Methods:
- Semi-structured interviews with 22 parents of children (0-16 years) hospitalized for burns.
- Follow-up interviews conducted with 18 parents post-discharge.
- Grounded theory methodology used for interview analysis.
Main Results:
- Parental presence during wound care involves shared distress, but parents prefer to be present.
- Key factors include parental emotional control, responsiveness to the child, and a sense of overall control.
- Burn care professionals play a crucial role in supporting parents.
Conclusions:
- Parental presence, when supported by professionals, can enhance parental coping and control.
- A model is proposed to guide professionals in assessing and supporting parents' needs during wound care.
- Addressing parents' emotional and practical needs is vital for optimal child and parent outcomes.
Aim:
Differing views on benefits and disadvantages of parental presence during their child's wound care after burn injury leave the topic surrounded by controversies. This study aimed to describe and explain parents' experiences of their presence or absence during wound care.
Methods:
Shortly after the burn event, 22 semi-structured interviews were conducted with parents of children (0-16 years old) that underwent hospitalization in one of the three Dutch burn centers. Eighteen of these parents also participated in follow-up interviews three to six months after discharge. Interviews were analyzed using grounded theory methodology.
Results:
Analyses resulted in themes that were integrated into a model, summarizing key aspects of parental presence during wound care. These aspects include parental cognitions and emotions (e.g., shared distress during wound care), parental abilities and needs (e.g., controlling own emotions, being responsive, and gaining overall control) and the role of burn care professionals.
Conclusion:
Findings emphasize the distressing nature of wound care procedures. Despite the distress, parents expressed their preference to be present. The abilities to control their own emotions and to be responsive to the child's needs were considered beneficial for both the child and the parent. Importantly, being present increased a sense of control in parents that helped them to cope with the situation. For parents not present, the professional was the intermediary to provide information about the healing process that helped parents to deal with the situation. In sum, the proposed model provides avenues for professionals to assess parents' abilities and needs on a daily basis and to adequately support the child and parent during wound care.
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