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Creation of Data Repositories to Advance Nursing Science
Joseph Perazzo1,2, Margaret Rodriguez1, Jackson Currie1
11 Case Western Reserve University, Cleveland, OH, USA.
Nurse researchers can create valuable data repositories for precision medicine initiatives. This strategy maximizes data utility and fosters collaboration, enhancing health research understanding.
Area of Science:
- Nursing Research
- Health Informatics
- Big Data in Healthcare
Background:
- Data repositories align with precision medicine and big data initiatives.
- Nurse researchers are well-positioned to contribute to data repository development.
- Maximizing data utility and fostering collaborative research are key benefits.
Purpose of the Study:
- Review the benefits and challenges of developing data repositories.
- Describe the process of developing and maintaining a data repository in HIV research.
- Present a pragmatic and affordable method for nurse scientists to build data repositories.
Main Methods:
- Systematic planning, data collection, and synthesis.
- Data sharing for robust cross-sectional and longitudinal analyses.
- Involved over 200 people living with HIV.
Main Results:
- Enabled robust cross-sectional and longitudinal analyses.
- Facilitated collaboration and training within and outside the organization.
- Demonstrated a pragmatic and affordable approach to repository building.
Conclusions:
- Data repositories are a valuable strategy for nurse scientists.
- Repository development enhances data utility and research collaboration.
- This approach supports continued advancement in understanding health phenomena.
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