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Paediatric palliative care improves patient outcomes and reduces healthcare costs: evaluation of a home-based program
P H Chong1, J A De Castro Molina2, K Teo2
1HCA Hospice Care, Singapore, Singapore. pohhengC@hcahospicecare.org.sg.
Insights
Home-based paediatric palliative care improves quality of life and reduces costs for children with life-limiting conditions. Patients spent more time at home, had fewer hospital admissions, and caregivers reported less burden.
Area of Science:
- Paediatric Palliative Care
- Health Services Research
- Cost-Benefit Analysis
Background:
- Limited research exists on the utility and impact of various paediatric palliative care models.
- Home-based paediatric palliative care aims to meet the unique needs of children with life-limiting conditions.
Purpose of the Study:
- To compare patient outcomes and healthcare expenditures between home-based paediatric palliative care and standard care.
- To evaluate the longitudinal impact of home-based paediatric palliative care on quality of life and caregiver burden.
Main Methods:
- A three-year impact and cost evaluation of Singapore's Star PALS programme.
- Utilized retrospective and prospective designs with two patient groups.
Main Results:
- Patients receiving home-based care spent 52 more days at home in their last year of life and had fewer hospital admissions.
- Home-based care patients were five times more likely to have an advance care plan and incurred up to 87% lower medical costs.
- Improvements were observed in patients' quality of life (pain, emotion) and caregiver burden within the first year.
Conclusions:
- Home-based paediatric palliative care enhances resource utilization and achieves cost savings for patients and providers.
- The programme improves the quality of life for both terminally ill children and their caregivers, allowing more quality time at home.
- Validated benefits of community paediatric palliative care can inform policy and service commissioning.
Background:
Around the world, different models of paediatric palliative care have responded to the unique needs of children with life shortening conditions. However, research confirming their utility and impact is still lacking. This study compared patient-related outcomes and healthcare expenditures between those who received home-based paediatric palliative care and standard care. The quality of life and caregiver burden for patients receiving home-based paediatric palliative care were also tracked over the first year of enrolment to evaluate the service's longitudinal impact.
Method:
A structured impact and cost evaluation of Singapore-based HCA Hospice Care's Star PALS (Paediatric Advance Life Support) programme was conducted over a three-year period, employing both retrospective and prospective designs with two patient groups.
Results:
Compared to the control group (n = 67), patients receiving home-based paediatric palliative care (n = 71) spent more time at home than in hospital in the last year of life by 52 days (OR = 52.30, 95% CI: 25.44-79.17) with at least two fewer hospital admissions (OR = 2.46, 95% CI: 0.43-4.48); and were five times more likely to have an advance care plan formulated (OR = 5.51, 95% CI: 1.55-19.67). Medical costs incurred by this group were also considerably lower (by up to 87%). Moreover, both patients' quality of life (in terms of pain and emotion), and caregiver burden showed improvement within the first year of enrolment into the programme.
Discussion:
Our findings suggest that home-based paediatric palliative care brings improved resource utilization and cost-savings for both patients and healthcare providers. More importantly, the lives of patients and their caregivers have improved, with terminally ill children and their caregivers being able to spend more quality time at home at the final stretch of the disease.
Conclusions:
The benefits of a community paediatric palliative care programme have been validated. Study findings can become key drivers when engaging service commissioners or even policy makers in appropriate settings.
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