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Helping Dementia Caregivers Manage Medical Problems: Benefits of an Educational Resource
Sheryl Zimmerman1,2, Philip D Sloane1,3, Kimberly Ward1
11 Cecil G. Sheps Center for Health Services Research, University of North Carolina, Chapel Hill, NC, USA.
Background/Rationale:
Family caregivers of people with dementia must attend to medical care needs of their relative, yet few available resources address comorbidities in dementia. Consequently, caregivers feel ill-equipped when medical concerns arise. In response, an educational resource-Alzheimer's Medical Advisor ( AlzMed)-was developed in 2 forms (website and book) and evaluated.
Methods:
Family caregivers (143 website and 51 book) used an educational resource that provides information on medical problems, vital signs, pain, dehydration, and the healthcare system. Data were collected at baseline, 3 months, and 6 months regarding confidence in sign/symptom management, burden, depression, and anxiety.
Results:
Caregivers reported significantly improved confidence and (for website users) decreased role strain. Anxiety and depression also decreased, although not significantly. Improved confidence related to a reduction in role strain and anxiety, and care recipients did not experience adverse events.
Conclusion:
An educational resource focusing on care of comorbid illness may benefit caregiver outcomes.
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