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Comparison of hernia registries: the CORE project
I Kyle-Leinhase1, F Köckerling2, L N Jørgensen3
1EuraHS and Department of Surgery, Maria Middelares Hospital, Buitenring Sint-Denijs 30, 9000, Ghent, Belgium.
Hernia : the Journal of Hernias and Abdominal Wall Surgery
|January 8, 2018
Summary
The international CORE project compared hernia registries, finding significant differences in data collection and funding. Despite variations, hernia registry data are crucial for clinical research and quality assurance.
Area of Science:
- Surgical research
- Health informatics
- Comparative effectiveness research
Background:
- Hernia registries are vital for tracking surgical outcomes and improving patient care.
- International collaboration is essential for standardizing data collection and analysis in surgical registries.
Purpose of the Study:
- To compare the content and outcome variables of existing international hernia registries.
- To analyze the methodologies, data collection practices, and funding models of various hernia registries.
Main Methods:
- The CORE project involved representatives from established hernia registries, including the Danish Hernia Database, Swedish Hernia Registry, Herniamed, EuraHS, Club Hernie, EVEREG, and AHSQC.
- Registries were compared based on initiation, funding, data collection, use for certification, patient data handling, operative data, complication registration, and follow-up.
- Key differences in compulsory versus voluntary participation, public versus industry funding, and data anonymization techniques were identified.
Main Results:
- The Danish Hernia Database is the only compulsory national registry; others are voluntary, with data completeness varying.
- Public funding supports the Danish and Swedish registries, while others rely on industry funding.
- Most registries use coded or anonymous patient data due to privacy regulations, with variations in personal identification methods.
Conclusions:
- Despite structural and operational differences, hernia registry data are indispensable for clinical research.
- Standardization of data collection and reporting across hernia registries could enhance their value in quality assurance and research.
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