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Quality of life in mucopolysaccharidoses: construction of a specific measure using the focus group technique

M R Oliveira1, I Schwartz1, L S Costa1

  • 1Universidade Federal do Rio Grande do Sul, Hospital de Clinicas de Porto Alegre, Rua Ramiro Barcelos, 2350, Santa Cecília, Porto Alegre, RS, 90035-903, Brazil.

BMC Research Notes
|January 17, 2018
PubMed
Abstract

Keywords:
Disease-specific QoL measureFocus groupMucopolysaccharidosesScale development

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