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Genesurance Counseling: Patient Perspectives
Chelsea Wagner1, Lauren Murphy2, Jacqueline Harkenrider2
1Department of Obstetrics, Gynecology, and Reproductive Sciences, McGovern Medical School, UTHealth, Houston, TX, 77030, USA. Chelsea.rickman@uth.tmc.edu.
Journal of Genetic Counseling
|January 20, 2018
Summary
Patients expect genetic counselors (GCs) to discuss insurance topics, including estimated costs and coverage, during genetic counseling. However, some expectations, like knowing specific insurance plans, are unrealistic, with ethnicity influencing these beliefs.
Area of Science:
- Genetics
- Healthcare Management
- Patient Experience
Background:
- Genetic counselors (GCs) increasingly discuss insurance-related ("genesurance") topics.
- No prior studies examined patient expectations regarding these "genesurance" discussions.
Purpose of the Study:
- To explore patient expectations of GCs concerning "genesurance" topics.
- To identify factors influencing these expectations.
Main Methods:
- A survey of 360 patients undergoing prenatal or cancer genetic counseling across 11 clinic sites.
- Analysis using descriptive statistics, chi-square, and logistic regression.
Main Results:
- Over 75% of patients expect GCs to discuss "genesurance" topics.
- Most patients expect GCs to estimate costs (78%), confirm coverage (77%), and provide referrals (76%).
- Unrealistic expectations include GCs knowing specific insurance plans (57%) and exact costs (41%); ethnicity predicted these beliefs.
Conclusions:
- Patients anticipate GCs will address "genesurance" and provide cost/coverage information.
- GCs are seen as responsible for initiating these discussions, though patients also feel responsible for asking.
- Further research is needed on effective communication and the scope of "genesurance" discussions in GC practice.
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