How Might the Genetics Profession Better Utilize Social Media

Area of Science:

• Genetics
• Healthcare Communication
• Digital Health

Background:

• Social media is increasingly used in personal and professional life.
• Genetic counselors are exploring new communication channels for patient engagement.
• Previous recommendations suggest genetic counselors should adopt social media.

Purpose of the Study:

• To survey genetic counselors and patients on their interest in using social media for patient-provider interactions.
• To identify potential uses and concerns regarding social media in genetic counseling.
• To gauge the need for national guidelines on social media use in genetic counseling.

Main Methods:

• A survey was distributed to full members of the National Society of Genetic Counselors (NSGC) in the USA and Canada.
• Genetics patients in Cleveland, OH, were also surveyed.
• The surveys assessed interest, concerns, and potential applications of social media in genetic counseling.

Main Results:

• Both genetic counselors and patients expressed interest in social media for genetic counseling communication.
• Patient privacy and confidentiality were key concerns for patients.
• Genetic counselors were less concerned about privacy for general information sharing and welcomed national guidelines.
• 88.7% of genetic counselors desired national guidelines for patient-provider social media use.

Conclusions:

• Social media presents opportunities for genetic counselors to share general information, define genetic counseling, and announce outreach events.
• Addressing privacy concerns is crucial for successful patient-provider social media adoption.
• Establishing national guidelines is essential for genetic counselors to effectively and safely utilize social media.