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Reducing informal caregiver burden in cancer: evidence-based programs in practice
Margaret L Longacre1,2, Allison J Applebaum3, Joanne S Buzaglo2
1Department of Public Health, Arcadia University, Glenside, PA, USA.
Translational Behavioral Medicine
|February 1, 2018
Summary
Cancer caregiver distress impacts patient outcomes. This article highlights three evidence-based programs: FOCUS, MSKCC
Area of Science:
- Oncology
- Psychosocial Support
- Caregiver Health
Background:
- Cancer caregiving is emotionally taxing and can lead to caregiver distress.
- Distressed caregivers face risks of psychiatric and medical issues, affecting patient outcomes.
- Existing community and clinical support services for cancer caregivers are insufficient.
Purpose of the Study:
- To describe three evidence-based programs and tools for supporting cancer caregivers.
- To discuss dissemination strategies for these caregiver support initiatives.
Main Methods:
- Description of the FOCUS Program, tested in randomized clinical trials and implemented in community settings.
- Overview of the Program for the Study of Cancer Caregivers at Memorial Sloan Kettering Cancer Center (MSKCC).
- Introduction to CancerSupportSource®-Caregiver, an online distress screening and referral platform.
Main Results:
- Three distinct evidence-based programs/tools are available to address cancer caregiver needs.
- These initiatives demonstrate successful implementation in diverse settings (community, healthcare system, online).
- Collaboration facilitated the development and effective deployment of these support services.
Conclusions:
- Existing evidence-based programs offer diverse approaches to meet cancer caregiver needs.
- Broader dissemination of these tools is crucial for supporting caregivers effectively.
- Collaborative efforts enhance the reach and impact of caregiver support initiatives.
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