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Life with a urostomy: A phenomenological study.

Giulia Villa1, Duilio F Manara1, Tommaso Brancato2

  • 1School of Nursing, Vita-Salute San Raffaele University, 20132 Milan, Italy.

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Summary
This summary is machine-generated.

Patients with urostomy experience significant life changes, necessitating personalized education and continuous support for effective self-care management. Understanding these factors improves quality of life for individuals with a urostomy.

Keywords:
ExperiencePhenomenologyQualitative researchSelf-careUrostomy

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Area of Science:

  • Nursing
  • Qualitative Research
  • Patient Self-Care

Background:

  • Urostomy creation leads to loss of bodily function, impacting body image and causing physical, psychological, and social lifestyle changes.
  • Limited research exists on the lifestyle adjustments and self-care experiences of individuals with urostomies.

Purpose of the Study:

  • To explore the self-care experiences of patients with urostomy.
  • To identify factors influencing self-care in urostomy patients.

Main Methods:

  • Qualitative design utilizing interpretative phenomenological analysis.
  • Semi-structured interviews with eleven individuals living with urostomies.
  • Data collected between March and September 2016.

Main Results:

  • Six major themes and twelve subthemes emerged from data analysis.
  • Key themes included surgery impact, body image, daily/social activities, stoma and sexuality, stoma education management, and social support.
  • Patient experiences encompass a wide range of adjustments to living with a urostomy.

Conclusions:

  • A urostomy significantly impacts patients' lives, requiring personalized pre-operative education and ongoing support.
  • Continuous, planned educational programs tailored to patient needs are crucial for effective urostomy self-care.
  • Nurses play a vital role in providing adequate support and personalized education to help patients manage their ostomy.