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Structure and Functions of Pediatric Aerodigestive Programs: A Consensus Statement
R Paul Boesch1, Karthik Balakrishnan2, Sari Acra3
1Mayo Clinic Children's Center, Rochester, Minnesota; boesch.paul@mayo.edu.
Insights
This study establishes a consensus definition for aerodigestive patients and programs, standardizing care for children with complex breathing, swallowing, and growth issues. It provides a framework for research and improved outcomes.
Area of Science:
- Pediatric Medicine
- Interdisciplinary Care Models
Background:
- Proliferation of aerodigestive programs lacks standardized definitions and research priorities.
- Need for consensus on patient definition, program structure, and research for aerodigestive care.
Framework:
- Utilized the Delphi method with a multidisciplinary panel to achieve consensus.
- Focused on four key areas: patient definition, program structure/function, research priorities, and program evaluation.
- Achieved consensus on 33 of 36 items after three survey iterations.
Implementation:
- Defined the aerodigestive patient and essential program components.
- Established recommendations for personnel, infrastructure, research, and outcome measures.
- Included consensus on feeding/swallowing, procedural scope, and funding.
Implications:
- Proposes the first consensus definition for the aerodigestive care model.
- Aims to standardize care, develop clinical guidelines, and enhance patient outcomes.
- Provides a foundational framework for future research and program development in aerodigestive medicine.
Abstract:
Aerodigestive programs provide coordinated interdisciplinary care to pediatric patients with complex congenital or acquired conditions affecting breathing, swallowing, and growth. Although there has been a proliferation of programs, as well as national meetings, interest groups and early research activity, there is, as of yet, no consensus definition of an aerodigestive patient, standardized structure, and functions of an aerodigestive program or a blueprint for research prioritization. The Delphi method was used by a multidisciplinary and multi-institutional panel of aerodigestive providers to obtain consensus on 4 broad content areas related to aerodigestive care: (1) definition of an aerodigestive patient, (2) essential construct and functions of an aerodigestive program, (3) identification of aerodigestive research priorities, and (4) evaluation and recognition of aerodigestive programs and future directions. After 3 iterations of survey, consensus was obtained by either a supermajority of 75% or stability in median ranking on 33 of 36 items. This included a standard definition of an aerodigestive patient, level of participation of specific pediatric disciplines in a program, essential components of the care cycle and functions of the program, feeding and swallowing assessment and therapy, procedural scope and volume, research priorities and outcome measures, certification, coding, and funding. We propose the first consensus definition of the aerodigestive care model with specific recommendations regarding associated personnel, infrastructure, research, and outcome measures. We hope that this may provide an initial framework to further standardize care, develop clinical guidelines, and improve outcomes for aerodigestive patients.
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