Self-perceptions from people with Down syndrome in Japan

Area of Science:

• Psychology
• Genetics
• Sociology

Background:

• Previous US research in 2011 found 99% of individuals with Down syndrome (DS) are happy with their lives.
• Down syndrome (DS) is gaining attention in Japan due to increasing maternal age and the introduction of Non-Invasive Prenatal Testing (NIPT).

Purpose of the Study:

• To investigate the self-perception of individuals with Down syndrome (DS) in Japan.
• To compare Japanese DS self-perception data with previous US findings.
• To provide relevant information for genetic counseling regarding Down syndrome (DS).

Main Methods:

• A questionnaire was administered to 300 participants aged 12+ who are members of the Japan Down Syndrome Society (JDS).
• Data was collected between October 30 and November 26, 2015.
• Analysis of 96 responses (32% return rate).

Main Results:

• Of the 96 respondents, 76 (97%) indicated they are happy with their lives.
• This finding aligns with the high self-reported happiness levels observed in a previous US study.
• The majority of people with Down syndrome (DS) in Japan exhibit positive self-perceptions.

Conclusions:

• Individuals with Down syndrome (DS) in Japan largely report positive life satisfaction.
• These findings are significant for genetic counseling, aiding prospective parents and families in visualizing life with DS.
• The study underscores the importance of understanding the quality of life for individuals with Down syndrome (DS).