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Paediatric Palliative Care in Resource-Poor Countries
Julia Downing1, Sue Boucher2, Alex Daniels3
1International Children's Palliative Care Network, Assagay 3624, South Africa. julia.downing@icpcn.org.
Insights
Millions of children worldwide need pediatric palliative care (PPC), but access is limited, especially in poorer regions. Strategies exist to overcome barriers and improve global access to essential PPC services.
Area of Science:
- Global Health
- Palliative Care
- Pediatric Care
Background:
- Paediatric palliative care (PPC) is crucial for children globally, with millions needing services, yet access is severely limited, particularly in resource-poor settings.
- The Lancet has recognized the importance of PPC within the global health agenda, including universal health coverage.
Purpose of the Study:
- To highlight the global need for paediatric palliative care (PPC) services.
- To identify challenges hindering PPC development worldwide.
- To discuss strategies for overcoming these challenges and improving access to PPC, especially in resource-poor settings.
Main Methods:
- Review of global statistics on the need for paediatric palliative care.
- Identification and analysis of barriers to PPC development.
- Exploration of strategies to enhance PPC provision.
Main Results:
- An estimated 21.6 million children globally require palliative care (PC), with 8.2 million needing specialist services.
- Key challenges include limited access to treatment and medications (like oral morphine), opiophobia, workforce shortages, policy gaps, and lack of awareness.
- Effective strategies involve advocacy, public awareness, education, improved medication access, implementation efforts, and research.
Conclusions:
- High-quality PPC can be delivered even in resource-poor settings.
- There is an urgent global need to scale up affordable, accessible, and quality PPC services.
- Ensuring all children requiring palliative care can access it is a critical global health imperative.
Abstract:
There is a great need for paediatric palliative care (PPC) services globally, but access to services is lacking in many parts of the world, particularly in resource-poor settings. Globally it is estimated that 21.6 million children need access to palliative care, with 8.2 needing specialist services. PC has been identified as important within the global health agenda e.g., within universal health coverage, and a recent Lancet commission report recognised the need for PPC. However, a variety of challenges have been identified to PPC development globally such as: access to treatment, access to medications such as oral morphine, opiophobia, a lack of trained health and social care professionals, a lack of PPC policies and a lack of awareness about PPC. These challenges can be overcome utilising a variety of strategies including advocacy and public awareness, education, access to medications, implementation and research. Examples will be discussed impacting on the provision of PPC in resource-poor settings. High-quality PPC service provision can be provided with resource-poor settings, and there is an urgent need to scale up affordable, accessible, and quality PPC services globally to ensure that all children needing palliative care can access it.
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