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Movement Retraining using Real-time Feedback of Performance
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Palliative Care for Movement Disorders.

Christina L Vaughan1, Benzi M Kluger2,3

  • 1Department of Neurology, University of Colorado Anschutz Medical Campus, 12631 E 17th Avenue, Mail Stop B-185, Aurora, CO, 80045, USA.

Current Treatment Options in Neurology
|February 22, 2018
PubMed
Summary
This summary is machine-generated.

Palliative care addresses complex needs in movement disorders beyond motor symptoms. Integrating primary palliative care skills can improve symptom management, psychosocial support, and quality of life for patients and families.

Keywords:
CaregiverGoals of careMovement disordersPalliative care

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Area of Science:

  • Neurology
  • Palliative Medicine
  • Patient Care

Background:

  • Traditional movement disorder care focuses on motor symptoms.
  • Optimal care requires addressing a wider spectrum of patient needs, including non-motor symptoms like pain and depression.
  • Palliative care, traditionally for cancer, is increasingly applied to chronic illnesses, including movement disorders.

Purpose of the Study:

  • To highlight the unmet needs of patients with movement disorders and their families.
  • To describe how a palliative care approach can alleviate suffering and enhance quality of life.
  • To outline primary palliative care skills for movement disorder specialists.

Main Methods:

  • Review of studies on patients with movement disorders and their caregivers.
  • Description of palliative care principles and their application to movement disorders.
  • Focus on primary palliative care skills relevant to movement disorder specialists.

Main Results:

  • Patients with movement disorders often have unmet needs, including underrecognized non-motor symptoms and inadequate psychosocial support.
  • A palliative care approach can empower patients, families, and clinicians to manage suffering.
  • Primary palliative care skills are foundational and complementary to specialist palliative care.

Conclusions:

  • Palliative care offers a framework to address the multidimensional needs of patients with movement disorders.
  • Integrating primary palliative care skills can optimize symptom management, caregiver support, and end-of-life care.
  • Further research is needed to develop and evaluate palliative care interventions for movement disorders.