The Default Position: Optimizing Pediatric Participation in Medical Decision Making

Aleksandra E Olszewski1, Sara F Goldkind2

  • 1a Seattle Children's Hospital.

Insights

Children should be included in medical decisions by default. This study proposes a systematic approach to guide clinicians on when and how to involve children in their healthcare choices, addressing a gap in current literature.

Area of Science:

  • Pediatric Healthcare
  • Medical Ethics
  • Clinical Decision-Making

Background:

  • Children's involvement in medical decision-making is ethically recommended but practically challenging for clinicians.
  • A structured method for assessing and implementing child participation in healthcare decisions is lacking in existing literature.

Purpose of the Study:

  • To propose a systematic, stepwise approach for determining when and how to include children in medical decision-making.
  • To provide a framework for clinicians to optimize child involvement in their healthcare.
  • To address the gap in the literature regarding a practical guide for child assent in medical contexts.

Main Methods:

  • Literature review on child participation in healthcare and related ethical/legal frameworks.
  • Development of a systematic approach based on the literature review.
  • Application of the proposed approach to analyze challenging clinical case studies involving adolescents.

Main Results:

  • A systematic approach for assessing child capacity and willingness to participate in medical decisions has been developed.
  • The approach integrates considerations from research assent, clinical care, and decision-making for adults with cognitive impairments.
  • Case studies illustrate the practical application of the proposed framework in complex scenarios.

Conclusions:

  • The proposed systematic approach offers a practical guide for clinicians to enhance children's involvement in medical decision-making.
  • Implementing this approach can help ensure children's voices are routinely heard in their healthcare, respecting their developing autonomy.
  • Further application and refinement of this framework can improve ethical and effective child-centered care.

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