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The Default Position: Optimizing Pediatric Participation in Medical Decision Making
Aleksandra E Olszewski1, Sara F Goldkind2
1a Seattle Children's Hospital.
Insights
Children should be included in medical decisions by default. This study proposes a systematic approach to guide clinicians on when and how to involve children in their healthcare choices, addressing a gap in current literature.
Area of Science:
- Pediatric Healthcare
- Medical Ethics
- Clinical Decision-Making
Background:
- Children's involvement in medical decision-making is ethically recommended but practically challenging for clinicians.
- A structured method for assessing and implementing child participation in healthcare decisions is lacking in existing literature.
Purpose of the Study:
- To propose a systematic, stepwise approach for determining when and how to include children in medical decision-making.
- To provide a framework for clinicians to optimize child involvement in their healthcare.
- To address the gap in the literature regarding a practical guide for child assent in medical contexts.
Main Methods:
- Literature review on child participation in healthcare and related ethical/legal frameworks.
- Development of a systematic approach based on the literature review.
- Application of the proposed approach to analyze challenging clinical case studies involving adolescents.
Main Results:
- A systematic approach for assessing child capacity and willingness to participate in medical decisions has been developed.
- The approach integrates considerations from research assent, clinical care, and decision-making for adults with cognitive impairments.
- Case studies illustrate the practical application of the proposed framework in complex scenarios.
Conclusions:
- The proposed systematic approach offers a practical guide for clinicians to enhance children's involvement in medical decision-making.
- Implementing this approach can help ensure children's voices are routinely heard in their healthcare, respecting their developing autonomy.
- Further application and refinement of this framework can improve ethical and effective child-centered care.
Abstract:
Inclusion of children in medical decision making, to the extent of their ability and interest in doing so, should be the default position, ensuring that children are routinely given a voice. However, optimizing the involvement of children in their health care decisions remains challenging for clinicians. Missing from the literature is a stepwise approach to assessing when and how a child should be included in medical decision making. We propose a systematic approach for doing so, and we apply this approach in a discussion of two challenging clinical cases. The approach is informed by a literature review, and is anchored by case studies of teenagers' refusal of clinical care, regulatory requirements for research assent, and the accepted approach to involving cognitively impaired adults in medical decisions.
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