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No question too small: development of a question prompt list for parents of critically ill infants

Monica E Lemmon1,2,3, Pamela K Donohue4,5, Erin P Williams6

  • 1Department of Neurology, Johns Hopkins School of Medicine, Baltimore, MD, USA. monica.lemmon@duke.edu.

Journal of Perinatology : Official Journal of the California Perinatal Association
|February 24, 2018
PubMed

Insights

A new question prompt list helps parents of critically ill infants prepare for healthcare team meetings. This tool is acceptable to parents and clinicians, enhancing engagement during neonatal intensive care unit stays.

Area of Science:

  • Neonatal Medicine
  • Neurodevelopmental Pediatrics
  • Family-Centered Care

Background:

  • Critically ill infants in the neonatal intensive care unit (NICU) face risks of neurodevelopmental impairment.
  • Parents of these infants often struggle to communicate effectively with healthcare teams during high-stress situations.
  • There is a need for tools to support parental understanding and engagement in medical decision-making.

Purpose of the Study:

  • To develop and evaluate a question prompt list (QPL) for parents of critically ill infants at risk for neurodevelopmental impairment.
  • To enhance parent preparedness and engagement in family meetings within the NICU setting.

Main Methods:

  • Content for the QPL was generated from audio-recorded NICU family meetings and parent interviews.
  • Clinician focus groups were utilized to refine the question content.
  • Acceptability testing of the QPL was conducted with both parents and clinicians.

Main Results:

  • The developed QPL content was found to be acceptable by all participating clinicians and parents.
  • Parents overwhelmingly reported the QPL as useful for preparing for meetings with their infant's healthcare providers.
  • The QPL demonstrated potential to improve parent-clinician communication and shared decision-making.

Conclusions:

  • The question prompt list is an acceptable and useful tool for parents of critically ill infants.
  • This QPL can facilitate greater parent engagement in family meetings during the acute phase of neonatal care.
  • Implementing this tool may improve the family-centered care approach in the NICU.
Abstract

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