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Content validation of the Patient-Reported Hamilton Inventory for Complex Regional Pain Syndrome: Validité de contenu

Tara L Packham, Joy C MacDermid, Susan L Michlovitz

    Canadian Journal of Occupational Therapy. Revue Canadienne D'Ergotherapie
    |February 25, 2018
    PubMed

    Insights

    Cognitive interviews refined a new patient-reported outcome measure for Complex Regional Pain Syndrome (CRPS), ensuring its validity for assessing daily function and symptoms in CRPS patients.

    Area of Science:

    • Neurology
    • Psychometrics
    • Patient-Reported Outcomes

    Background:

    • Complex Regional Pain Syndrome (CRPS) significantly impairs daily life and roles.
    • A specific patient-reported outcome measure is under development for CRPS evaluation.

    Purpose of the Study:

    • To utilize cognitive interviews for assessing the content validity of a new CRPS patient-reported outcome measure.
    • To refine the measure based on patient feedback regarding wording and relevance.

    Main Methods:

    • Cognitive interviews were conducted with 44 individuals diagnosed with CRPS.
    • Analysis focused on identifying issues with question wording and content.
    • Statistical methods included item-total correlations and floor/ceiling effect analysis.

    Main Results:

    • Interviews revealed areas where questions were misunderstood or incomplete, such as regarding depression and skin temperature.
    • The proposed scales for symptoms, daily function, and coping/social impact showed good internal consistency (Cronbach's alpha 0.76-0.86).
    • No significant floor or ceiling effects were observed, despite potential sampling bias in symptom severity.

    Conclusions:

    • This research establishes a basis for the ongoing development and validation of the Patient-Reported Hamilton Inventory for CRPS.
    • The study highlights the critical role of iterative decision-making in robust instrument development for complex conditions.
    Abstract

    Keywords:
    Cognitive debriefingCohérence interneContent validityDébreffage cognitifInternal consistencyPatient-reported outcomesPsychometric evaluationRésultats déclarés par le patientValidité de contenuÉvaluation psychométrique

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