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A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
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Counselling and management for anticipated extremely preterm birth

Brigitte Lemyre1, Gregory Moore1

  • 1Canadian Paediatric Society, Fetus and Newborn Committee, Ottawa, Ontario.

Paediatrics & Child Health
|February 28, 2018
PubMed

Insights

This revised statement offers a prognosis-based approach for counselling parents of extremely preterm infants. It incorporates gestational age, fetal factors, and Canadian survival data to guide management decisions.

Area of Science:

  • Neonatal Medicine
  • Perinatal Counselling
  • Medical Ethics

Background:

  • Counselling parents of extremely preterm infants presents unique challenges.
  • Effective communication and informed decision-making are crucial in perinatal care.

Purpose of the Study:

  • To propose a revised, prognosis-based approach for counselling couples facing the birth of an extremely preterm infant.
  • To update data on survival, neurodevelopmental disability, and quality of life in Canada.
  • To provide a framework for presenting management options to parents.

Main Methods:

  • Utilizing a prognosis-based approach considering gestational age, estimated fetal weight, antenatal corticosteroids, pregnancy type, fetal status, anomalies, and place of birth.
  • Updating Canadian data on infant survival and long-term neurodevelopmental outcomes.
  • Focusing on effective communication strategies for healthcare providers.

Main Results:

  • The revised approach integrates multiple prognostic factors for a comprehensive assessment.
  • Updated Canadian data provides current benchmarks for survival and long-term outcomes.
  • A structured framework is proposed to facilitate shared decision-making.

Conclusions:

  • A prognosis-based approach enhances counselling for parents of extremely preterm infants.
  • Updated data and a clear framework support informed parental decision-making.
  • This statement replaces the 2012 guidance, reflecting advancements in perinatal care.

Keywords:
ANCSDecision makingExtremely preterm infantNDDQOLSDM

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