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Emergency Information Forms for Children With Medical Complexity: A Qualitative Study.
Tara Conway Copper1, Donna B Jeffe2, Fahd A Ahmad1
1From the Division of Emergency Medicine, Department of Pediatrics.
Pediatric Emergency Care
|March 1, 2018
Summary
Emergency information forms (EIFs) can improve care for children with medical complexity (CMC) during emergencies. Stakeholders prefer web-based, sync-capable EIFs owned by patients but maintained by providers.
Area of Science:
- Pediatric Emergency Medicine
- Health Informatics
- Patient Safety
Background:
- Children with medical complexity (CMC) face significant risks during medical emergencies.
- Emergency information forms (EIFs) are crucial for providing essential medical data for CMC but are underutilized.
Purpose of the Study:
- To identify factors influencing optimal emergency care for CMC.
- To inform the development of effective Emergency Information Forms (EIFs) for CMC.
Main Methods:
- Qualitative study involving interviews with 26 stakeholders (parents, healthcare providers, HIT experts, privacy experts).
- Thematic analysis of interview data to identify barriers, facilitators, and desired EIF characteristics.
- Inquiry into content, structure, ownership, and maintenance of EIFs.
Main Results:
- Barriers include documentation issues and poor understanding of CMC conditions by providers and caregivers.
- Stakeholders desire summary documents, including demographics, medical history, medications, allergies, advance directives, and emergency action plans.
- Preference for electronic, web-based EIFs that sync with medical records, with portable copies.
Conclusions:
- Web-based, sync-capable EIFs with portable copies are preferred for optimal emergency care.
- EIFs should ideally be patient-owned to ensure availability, with providers responsible for creation and updates.
- This approach aligns with the medical home model and enhances emergency preparedness for CMC.
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