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Emerging Methodologies in Pediatric Palliative Care Research: Six Case Studies

Katherine E Nelson1,2, James A Feinstein3,4, Cynthia A Gerhardt5,6

  • 1Pediatric Advanced Care Team, Department of Paediatrics, Hospital for Sick Children, Toronto, ON M5G 1X8, Canada. katherine.nelson@sickkids.ca.

Children (Basel, Switzerland)
|March 3, 2018
PubMed

Insights

Pediatric palliative care (PPC) research uses novel methods to address challenges in symptom assessment, intervention evaluation, and care delivery for children with serious illnesses. This ensures comprehensive support for patients and families.

Area of Science:

  • Pediatrics
  • Palliative Care
  • Medical Research Methodology

Background:

  • Pediatric palliative care (PPC) addresses multifaceted needs of children with life-limiting illnesses.
  • Existing research methods face limitations in capturing the complexities of PPC.

Purpose of the Study:

  • To describe challenges in PPC research.
  • To present innovative methodological approaches to overcome these challenges.

Main Methods:

  • Discusses novel strategies for symptom assessment in nonverbal children.
  • Outlines methods for evaluating medical interventions and polypharmacy.
  • Addresses data challenges in longitudinal studies and long-term efficacy.
  • Explores monitoring for inequities in PPC service delivery.

Main Results:

  • Identified specific research gaps and methodological hurdles in PPC.
  • Proposed creative solutions and novel approaches for PPC research.

Conclusions:

  • Creative methodologies are essential for advancing pediatric palliative care research.
  • These novel approaches can improve the quality and equity of care for children with serious illnesses.

Keywords:
outcomespediatric palliative careresearch methods

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