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You Will Have a New Life.

Adi Finkelstein1

  • 1Department of Nursing, Faculty of Life and Health Sciences, Jerusalem College of Technology, Jerusalem, Israel adilan@netvision.net.il.

Annals of Family Medicine
|March 14, 2018
PubMed
Summary

This narrative explores the long-term experience of living with ulcerative colitis and the daily renegotiation of life after a total colectomy. It highlights the ongoing challenges and rewards of adapting to a surgically altered body and life.

Area of Science:

  • Medical Anthropology
  • Gastroenterology
  • Patient Experience

Background:

  • Ulcerative colitis is a chronic inflammatory bowel disease requiring significant patient adaptation.
  • Surgical interventions like total colectomy offer a "new life" but necessitate ongoing adjustments.

Purpose of the Study:

  • To provide a personal narrative reflecting on the long-term lived experience of ulcerative colitis.
  • To explore the challenges and rewards of adapting to life after a total colectomy from a medical anthropology perspective.

Main Methods:

  • Personal narrative and autoethnography.
  • Reflective analysis of a 30-year journey with ulcerative colitis and 20 years post-colectomy.

Main Results:

Keywords:
colectomyhealingillness experienceulcerative colitis

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  • The transition to a "new life" post-colectomy is an ongoing process of daily renegotiation.
  • Living with a chronic condition and its surgical management involves continuous adaptation to physical and psychosocial challenges.

    • Conclusions:

    • The long-term management of ulcerative colitis requires a holistic understanding of patient adaptation beyond the initial surgical outcome.
    • Medical anthropology offers valuable insights into the lived realities of chronic illness and surgical recovery.