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Talking Points: Women's Information Needs for Informed Decision-Making About Noninvasive Prenatal Testing for Down
Aimée C Dane1,2, Madelyn Peterson1, Yvette D Miller3
1School of Natural Sciences, Griffith University, Brisbane, QLD, 4069, Australia.
Journal of Genetic Counseling
|March 19, 2018
Summary
Women want comprehensive information for noninvasive prenatal testing (NIPT) decisions. Key details include NIPT accuracy and comparisons to other tests for informed choices.
Area of Science:
- Genetics
- Reproductive Health
- Medical Decision-Making
Background:
- Informed decision-making relies on adequate knowledge.
- Women's information preferences for noninvasive prenatal testing (NIPT) are not well understood.
- NIPT is increasingly used as a first-tier, out-of-pocket expense test.
Purpose of the Study:
- To identify women's information needs for NIPT decision-making.
- To inform best practices for pre-test counseling, especially in time- or space-limited scenarios.
- To prioritize information for decision support tools.
Main Methods:
- Survey administered to 242 women in Australia.
- Participants rated the importance of 24 information items regarding NIPT.
- Participants selected the two most valued information items.
Main Results:
- Women desire complete information for NIPT decisions.
- NIPT accuracy was highly valued.
- Pros and cons of NIPT versus other screening and invasive tests were most important.
Conclusions:
- Prioritizing information on NIPT accuracy and comparative test data can enhance decision support.
- Findings can optimize limited counseling scenarios and decision tools.
- Full, tailored information remains essential when feasible.