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Optimizing an eHealth insomnia intervention for children with neurodevelopmental disorders: a Delphi study
Nicole Ali1, Gabrielle Rigney1, Shelly K Weiss2
1Dalhousie University, Halifax, NS, Canada.
Insights
Experts reached consensus on key components for an eHealth intervention to improve sleep in children with neurodevelopmental disorders (NDDs). This parent-delivered program shows potential as a transdiagnostic approach for conditions like ADHD and autism.
Area of Science:
- Pediatric Sleep Medicine
- Digital Health Interventions
- Neurodevelopmental Disorders
Background:
- Insomnia is prevalent in children with neurodevelopmental disorders (NDDs), impacting daytime functioning.
- Behavioral strategies are effective for childhood insomnia but face access barriers.
- Limited research exists on the usability and effectiveness of eHealth interventions for this population.
Purpose of the Study:
- To achieve expert consensus on essential elements for an eHealth, parent-implemented intervention.
- To target improvements in sleep for children with attention-deficit/hyperactivity disorder, autism spectrum disorder, cerebral palsy, and fetal alcohol spectrum disorder.
- To identify priority components for a behaviorally-based insomnia intervention.
Main Methods:
- Utilized the Delphi method for iterative expert consensus-building.
- Participants (n=27, 21, 18 across rounds) rated 131 recommendations.
- Assessed importance, consensus, and applicability across four NDD groups.
Main Results:
- Identified 52 high-importance, high-consensus priority items for the eHealth intervention.
- 84% of initial recommendations were deemed applicable across all four NDD groups.
- Demonstrated potential for a transdiagnostic intervention approach.
Conclusions:
- Established core components for an eHealth, parent-delivered intervention for pediatric insomnia in NDDs.
- The intervention shows promise for broad applicability across diverse neurodevelopmental conditions.
- Supports the development of accessible, transdiagnostic digital health solutions for childhood sleep issues.
Abstract:
Insomnia, which is related to daytime deficits and is a common problem for children with neurodevelopmental disorders (NDDs), is often successfully treated with behavioral strategies. However, there are barriers to accessing these treatments, and there has been little research examining what these interventions need to be usable and effective. The goal of this study was to gain consensus from experts in the field on the key components of an eHealth, parent-implemented, intervention program aimed at improving sleep in children with attention-deficit/hyperactivity disorder, autism spectrum disorder, cerebral palsy, and fetal alcohol spectrum disorder. This was achieved using the Delphi method, which involves asking participants to respond to open-ended questions about a topic of interest and then, in iterative rounds, to rate the recommendations that were made by the group. In the current study, participants (27 responders in the first round, 21 in the second, and 18 in the third) rated a total of 131 recommendations. Of those 131 recommendations, 52 items had high importance and high consensus and were deemed to be priority items to consider for creating an eHealth, parent-delivered, behaviorally-based intervention for insomnia in children with NDD. Furthermore, 75% (n = 84) of the 112 recommendations from the first round were believed to be applicable across all 4 NDD groups, thus providing evidence of the potential for a transdiagnostic intervention.
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