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Caring for urologic transition patients: Current practice patterns and opinions.

J M Zillioux1, J N Jackson1, C D A Herndon2

  • 1Department of Urology, University of Virginia, Charlottesville, VA, USA.

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|March 22, 2018
PubMed
Summary

Formal transition clinics improve care for adult patients with congenital urologic issues. However, many practices lack these specialized clinics, highlighting a gap between ideal and current care for congenital urology patients.

Keywords:
Adolescent urologyCongenitalismTransition clinic

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Area of Science:

  • Urology
  • Congenital Urologic Conditions
  • Transitional Care

Background:

  • Congenitalism addresses the complex needs of adults with congenital urologic issues.
  • Transitional care clinics are emerging but face challenges in resource availability, insurance, and multi-disciplinary care.

Purpose of the Study:

  • To characterize practice patterns and physician opinions on managing urologic transition patients.
  • To identify factors influencing the quality of care for this population.

Main Methods:

  • Anonymous 20-question survey distributed to Society of Pediatric Urology members.
  • Data analyzed using R, with subgroup analyses based on clinic structure, city size, and practice type.

Main Results:

  • 32% of respondents reported having a formal transition clinic.
  • Clinics with formal transition programs reported higher physician enthusiasm and perceived quality of care.
  • Most respondents (64%) believed adult specialists are best suited for these patients, yet clinics are often staffed by pediatric providers.

Conclusions:

  • Formal transition clinics are associated with improved care for urologic transition patients.
  • A significant discordance exists between recommended optimal care models and current practice patterns.
  • There is a need to align practice structures with the specialized needs of adult congenital urology patients.