Healthcare Transition in Pediatrics and Young Adults With Inflammatory Bowel Disease: A Scoping Review

Noelle Rohatinsky1, Tracie Risling, Maha Kumaran

  • 1Noelle Rohatinsky, PhD, RN, CMSN(C), is Assistant Professor, College of Nursing, University of Saskatchewan, Saskatoon, Canada. Tracie Risling, PhD, RN, is Assistant Professor, College of Nursing, University of Saskatchewan, Saskatoon, Canada. Maha Kumaran, MA, MLIS, is Librarian, Leslie & Irene Dubé Health Sciences Library, University of Saskatchewan, Saskatoon, Canada. Laurie-ann M. Hellsten, PhD, is Professor, Department of Educational Psychology and Special Education, College of Education, University of Saskatchewan, Saskatoon, Canada. Nancy Thorp-Froslie, MPH, is Registered Nursing Student, College of Nursing, University of Saskatchewan, Saskatoon, Canada.

Insights

Healthcare transition for pediatric inflammatory bowel disease (IBD) patients needs better support. This review highlights a growing need for readiness assessment tools to improve young adults' quality of life.

Area of Science:

  • Pediatric Gastroenterology
  • Healthcare Transition Research
  • Chronic Disease Management

Background:

  • Inflammatory bowel disease (IBD) incidence is rising in children.
  • Young adults with IBD face challenges transitioning to adult care, risking complications.
  • Adequate support during healthcare transition is crucial for managing IBD.

Purpose of the Study:

  • To review the literature on healthcare transition for pediatric and young adult IBD patients.
  • To identify assessment or screening tools for evaluating healthcare transition readiness.
  • To synthesize current knowledge to improve patient outcomes.

Main Methods:

  • Scoping review methodology employed.
  • Searched five major databases for relevant literature.
  • Included 22 articles meeting predefined inclusion criteria.

Main Results:

  • Most studies focused on adolescents/young adults with IBD, primarily in the US.
  • A notable increase in publications since 2008 was observed.
  • Literature covers readiness assessment tools, patient outcomes, and transition barriers.

Conclusions:

  • Understanding current readiness assessment and support strategies is vital.
  • Improved transition support can enhance the quality of life for pediatric and young adult IBD patients.
  • Further research is needed to develop and validate transition readiness tools.

Related Concept Videos

Inflammatory Bowel Disease II: Crohn's Disease01:30

Inflammatory Bowel Disease II: Crohn's Disease

Introduction
Inflammatory bowel disease, commonly known as IBD, refers to a collection of disorders that lead to persistent inflammation of the gastrointestinal tract. The two types of IBD are ulcerative colitis, which impacts the colon, and Crohn's disease, which can involve any part of the gastrointestinal segment.
Crohn's disease
Crohn's disease is a chronic, systemic inflammatory bowel disease (IBD) that predominantly affects the gastrointestinal tract. It is marked by...
1.2K
Inflammatory Bowel Disease I: Ulcerative Colitis01:27

Inflammatory Bowel Disease I: Ulcerative Colitis

Introduction
Inflammatory bowel disease, or IBD, encompasses a group of disorders characterized by chronic inflammation or ulceration of the gastrointestinal tract.
Risk Factors
The exact cause of IBD remains unclear, although it is believed to be due to a mix of genetic, environmental, microbial, and immune factors. Genetic factors are significant in determining susceptibility to IBD, with family history being a critical risk factor. Individuals with a first-degree relative who has IBD are at...
1.1K
Inflammatory Bowel Disease V: Surgical Management01:21

Inflammatory Bowel Disease V: Surgical Management

Surgical interventions for inflammatory bowel disease (IBD), which includes ulcerative colitis and Crohn's disease, are essential in managing symptoms and addressing complications. The selection of surgical procedures is contingent upon the specific conditions and complications that stem from these illnesses.
Here are some common surgical interventions for IBD:
639
Inflammatory Bowel Disease IV: Pharmacological Management01:29

Inflammatory Bowel Disease IV: Pharmacological Management

Upon diagnosis, managing Inflammatory Bowel Disease (IBD) involves addressing several crucial aspects. The primary goals include resting the bowel, correcting malnutrition, and providing symptomatic relief. Resting the bowel may consist of medications to reduce inflammation and promote healing. Correcting malnutrition is essential, often requiring dietary adjustments and nutritional supplements. Symptomatic relief aims to ease pain, diarrhea, and other discomforts in IBD.
Pharmacologic...
726
Inflammatory Bowel Disease III: Diagnostic Studies and Management I-Nutritional Therapy01:30

Inflammatory Bowel Disease III: Diagnostic Studies and Management I-Nutritional Therapy

Various diagnostic tests are employed in the diagnostic process for Inflammatory Bowel Disease (IBD), particularly to differentiate between Crohn's disease and ulcerative colitis.
Diagnostic studies
A colonoscopy is the definitive screening test, distinguishing ulcerative colitis from other colon diseases with similar symptoms. During a colonoscopy test, inflamed mucosa with exudate ulcerations can be observed, and biopsies are taken to determine the histologic characteristics of the...
848
The Scope of Physics01:17

The Scope of Physics

Physics is concerned with the interactions of energy, matter, space, and time, in order to discover the underlying mechanisms that underpin all phenomena. The word "physics" comes from the Greek word "phúsis", which means nature. Physics seeks to comprehend the natural world around us at its most fundamental level. It emphasizes the use of quantitative laws to do this, which could be valuable in other fields that want to push the performance boundaries of present...
53.6K