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Perspectives on Neuroscience
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Patient perspectives on compensation for biospecimen donation.

Samuel C Allen1, Minisha Lohani2, Kristopher A Hendershot3

  • 1a Department of Hematology and Medical Oncology , Winship Cancer Institute, Emory University School of Medicine , Atlanta , Georgia , USA.

AJOB Empirical Bioethics
|April 4, 2018
PubMed
Summary

Most biospecimen donors do not expect payment for tissue donation, prioritizing altruism over monetary reward. A minority believe compensation is warranted for for-profit research use of donated biological materials.

Keywords:
donation/procurement of organs/tissuesethicspatient perspectiveresearch compensation

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Area of Science:

  • Biobanking
  • Medical Ethics
  • Patient Advocacy

Background:

  • Understanding biospecimen donor perspectives on compensation is crucial for improving informed consent and recruitment.
  • This study is the first to investigate patient views on receiving payment for biospecimen donation.

Purpose of the Study:

  • To determine if biospecimen donors believe they should be compensated for their biological material.
  • To inform biobanking practices regarding donor compensation and recruitment strategies.

Main Methods:

  • 126 biospecimen donors were interviewed within 30 days post-surgery.
  • Participants provided their perspectives on compensation for donating biological materials to a biobank at Emory University Hospital.

Main Results:

  • 75% of donors stated they should not be paid, emphasizing altruism.
  • 9% unequivocally believed they should receive compensation.
  • 11% felt compensation was conditional, particularly for for-profit research, with variations by race and income.

Conclusions:

  • The majority of biospecimen donors do not expect monetary compensation.
  • A minority support compensation for tissue used in revenue-generating research.
  • Findings support current biobanking practices of not offering compensation.