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A Qualitative Study Exploring Perceptions of Patients With Gout
Li Ling Seow1, Nana Jiao2,3, Wenru Wang2,3
1Singapore General Hospital, Singapore.
Clinical Nursing Research
|April 11, 2018
Summary
Living with gout significantly impacts physical and psychosocial well-being. Patients
Area of Science:
- Rheumatology and immunology
- Qualitative health research
- Patient-centered care
Background:
- Gout is a prevalent chronic inflammatory arthritis with increasing incidence worldwide.
- The disease significantly impacts patients' physical function and psychosocial well-being.
- Understanding patient perspectives is crucial for effective gout management.
Purpose of the Study:
- To explore the lived experiences and perceptions of individuals managing chronic gout.
- To identify key themes and challenges faced by patients with gout.
- To inform the development of supportive and educational interventions for gout patients.
Main Methods:
- A descriptive qualitative study design was employed.
- Face-to-face interviews were conducted with 15 adult patients diagnosed with gout.
- Thematic analysis was utilized to interpret the transcribed interview data.
Main Results:
- Patient experiences with gout were categorized into four main themes: emotional impact, daily life disruptions, doctor interactions, and coping strategies.
- Emotional experiences included feelings of frustration, embarrassment, and anxiety.
- Daily life disruptions encompassed limitations in physical activities, dietary restrictions, and social isolation.
- Interactions with healthcare providers varied, highlighting the need for improved communication and understanding.
- Patients employed a combination of internal (e.g., resilience, acceptance) and external (e.g., medication, social support) resources for coping.
Conclusions:
- Holistic patient education, incorporating emotional and psychosocial aspects, is essential for improving gout management.
- Involving family members in patient care can enhance support systems.
- Developing nurse-led support groups can provide a platform for shared experiences and coping strategies.
- Raising public awareness about gout is crucial to reduce stigma and promote early intervention.
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