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Effects of a Care Coordination Intervention with Children with Neurodevelopmental Disabilities and Their Families

Jeanne W McAllister1, Rebecca McNally Keehn2, Rylin Rodgers2

  • 1Department of Pediatrics, Children's Health Services Research, Indiana University School of Medicine, Indianapolis, IN.

Journal of Developmental and Behavioral Pediatrics : JDBP
|April 20, 2018
PubMed

Insights

Implementing a Shared Plan of Care (SPoC) improved care coordination for children with neurodevelopmental disabilities, enhancing family empowerment and reducing worry. This approach shows promise for complex pediatric care.

Area of Science:

  • Pediatric healthcare
  • Care coordination
  • Family-centered care

Background:

  • Care coordination is crucial for improving pediatric health outcomes.
  • Research on the outcomes of care coordination, specifically using a Shared Plan of Care (SPoC), in children with complex medical conditions is limited.
  • This study addresses the gap by exploring family outcomes of a care coordination intervention utilizing SPoC in children with neurodevelopmental disabilities.

Purpose of the Study:

  • To explore family outcomes associated with a care coordination intervention using a Shared Plan of Care (SPoC).
  • To evaluate the feasibility and effects of the intervention on care coordination access, SPoC use, goal achievement, needs met, family-professional partnerships, family empowerment, and worry.
  • To assess the effectiveness of a family-centered, goal-oriented SPoC model for children with complex neurodevelopmental disorders.

Main Methods:

  • A single-group, repeated-measures design was employed.
  • The study involved 70 children aged 2 to 10 years with neurodevelopmental disabilities (autism spectrum disorder, global developmental delay/intellectual disability).
  • The intervention included previsit assessments, planned care visits, SPoC development, and 6-month care coordination, with data collected at two time points.

Main Results:

  • Significant improvements were observed in care coordination access, SPoC use, goals achieved, needs met, and family empowerment.
  • A significant reduction in family worry was reported.
  • No significant changes were found in family-professional partnerships or reported SPoC use.

Conclusions:

  • A family-centered, goal-oriented SPoC model is a feasible and effective approach for care coordination in children with complex neurodevelopmental disorders.
  • The intervention demonstrated positive impacts on various family outcomes.
  • Further research with control groups and longer follow-up periods is recommended to validate these findings and explore broader impacts.

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