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A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
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Frequency of participation and association with functioning in adolescents born extremely preterm - Findings from a

K Sell1, M Rapp1, H Muehlan2

  • 1Klinik für Kinder- und Jugendmedizin, University of Luebeck, Ratzeburger Allee 160, 23538 Luebeck, Germany.

Early Human Development
|April 21, 2018
PubMed

Insights

Adolescents born extremely preterm participate less in autonomy, relationships, and community recreation compared to peers. This reduced participation is linked to physical, cognitive, and psychological challenges, highlighting the need for targeted interventions.

Area of Science:

  • Rehabilitation research
  • Developmental psychology
  • Pediatric health outcomes

Background:

  • Extremely preterm birth (<28 weeks gestation) outcomes are well-studied, with established adult follow-up.
  • Participation, as defined by the International Classification of Functioning, Disability and Health, is a key outcome in rehabilitation.
  • Adolescent participation is vital for social role adaptation.

Purpose of the Study:

  • To investigate participation in Autonomy, Relationships, and Community Recreation among adolescents born extremely preterm.
  • To compare participation levels with matched peers from the general population.
  • To examine associations between participation and functioning (physical, cognitive, psychological) and contextual factors.

Main Methods:

  • Cross-sectional, population-based study in a German federal state.
  • Follow-up of 72 adolescents born between January 1997 and December 1999 at under 27 weeks gestation, assessed at ages 14-17.
  • Questionnaire of Young People's Participation (short form) used to assess frequency, with multivariate regression for associations.

Main Results:

  • Adolescents born extremely preterm showed significantly lower participation in Autonomy, Relationships, and Community Recreation compared to matched peers (p < 0.001).
  • Lower participation in Autonomy and Relationships correlated with severe physical, cognitive impairments, and psychological problems.
  • Regression models explained 57% of the variance in Autonomy and 31% in Relationships.

Conclusions:

  • Adolescents born extremely preterm exhibit restricted participation in key life domains.
  • Physical, cognitive, and psychological factors significantly influence participation levels.
  • Further research is needed to develop interventions aimed at enhancing participation for this population.
Abstract

Keywords:
AdolescenceAutonomyDisabilityExtremely premature birthICFParticipation

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