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Updated: Feb 11, 2026

A Protocol for Comprehensive Assessment of Bulbar Dysfunction in Amyotrophic Lateral Sclerosis ALS
Published on: February 21, 2011
[Clinical characteristics of patients with ALS hospitalised at home]
Catherine Nativel1, Odile Marquestaut1
1Hospitalisation à domicile, Assistance publique-hôpitaux de Paris (AP-HP), 14, rue Vésale, 75005 Paris, France.
Abstract:
A study was carried out in 2013 in order to describe, using data from the programme for a medicalised information system, the population of patients with amyotrophic lateral sclerosis (ALS) cared for through the hospital at home service of the AP-HP Paris hospital group. This study highlights the highly technical nature of the care, in a context of palliative care and patient dependency. Patient care needs to be coordinated, preferably within a network.
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