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Initial development and validation of a fecal incontinence-specific quality of life measure

Christopher C Cushing1, Melody R S Threlkeld2, Bruno Martinez-Leo2

  • 1Clinical Child Psychology Program, University of Kansas, Dole Human Development Center, Lawrence, KS.

Journal of Pediatric Surgery
|April 25, 2018
PubMed

Insights

The Cincinnati Fecal Incontinence Scale (CINCY-FIS) is a new, reliable tool to measure quality of life and stress in children with fecal incontinence. It is sensitive to changes, making it useful for clinical and research settings.

Area of Science:

  • Pediatric Gastroenterology
  • Psychometrics
  • Quality of Life Research

Background:

  • Fecal incontinence is common in children and significantly impacts their psychosocial well-being and family dynamics.
  • Existing measures may not fully capture the multifaceted impacts of pediatric fecal incontinence.
  • There is a need for a validated instrument to assess quality of life and caregiver burden.

Purpose of the Study:

  • To develop and psychometrically validate the Cincinnati Fecal Incontinence Scale (CINCY-FIS).
  • To assess the quality of life for children experiencing fecal incontinence.
  • To evaluate the impact of pediatric fecal incontinence on caregivers and parenting stress.

Main Methods:

  • Item generation involved literature review, expert consensus, and pilot testing with 8 families.
  • Confirmatory factor analysis was performed on data from 222 caregivers to reduce items to a final 18-item scale.
  • Validity (convergent and criterion) and reliability (internal consistency, test-retest) were rigorously assessed.

Main Results:

  • A five-factor first-order structure with two higher-order factors showed a good fit to the data.
  • The CINCY-FIS demonstrated established convergent and criterion validity across all scales.
  • High reliability was confirmed through internal consistency and test-retest measures.

Conclusions:

  • The CINCY-FIS is a psychometrically sound and dependable tool for assessing pediatric fecal incontinence.
  • It effectively measures disease-specific quality of life and parenting stress in this population.
  • The scale's sensitivity to change makes it valuable for both clinical practice and research applications.
Abstract

Keywords:
Bowel managementFecal incontinencePediatricPsychosocial

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