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From Inpatient to Clinic to Home to Hospice and Back: Using the "Pop Up" Pediatric Palliative Model of Care
1Department of Palliative Care, The Children's Hospital at Westmead, The Sydney Children's Hospitals Network, Westmead, NSW 2145, Australia. martha.mherekumombe@health.nsw.gov.au.
Insights
Continuity of care for children needing palliative care is vital. The "Pop Up" model enhances local provider confidence, improving care delivery across various settings for improved quality of life.
Area of Science:
- Pediatric Palliative Care
- Healthcare Delivery Models
- Continuity of Care
Background:
- Children and young people with life-limiting illnesses often have complex conditions requiring frequent hospitalizations and transfers.
- Maintaining holistic and continuous care for these patients across different settings is crucial for their quality of life.
- Existing care models may not adequately address the complexities of care transitions for pediatric palliative patients.
Abstract:
Children and young people with life-limiting illnesses who need palliative care often have complex diverse medical conditions that may involve multiple hospital presentations, medical admissions, care, or transfer to other medical care facilities. In order to provide patients with holistic care in any location, palliative care clinicians need to carefully consider the ways to maintain continuity of care which enhances the child's quality of life. An emerging model of care known as "Pop Up" describes the approaches to supporting children and young people in any facility. A Pop Up is a specific intervention over and above the care that is provided to a child, young person and their family aimed at improving the confidence of local care providers to deliver ongoing care. This paper looks at some of the factors related to care transfer for pediatric palliative patients from one care facility to another, home and the impact of this on the family and medical care.