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Sleep Outcomes for Parents of Children With Neurodevelopmental Disabilities: A Systematic Review

Samantha K Micsinszki1, Marilyn Ballantyne1,2, Kristin Cleverley1

  • 11 University of Toronto, Ontario, Canada.

Journal of Family Nursing
|May 10, 2018
PubMed

Insights

Parents caring for children with Neurodevelopmental Disabilities (NDDs) frequently experience poor sleep quality. This review highlights a significant need for more high-quality research on parental sleep in NDD populations.

Area of Science:

  • Neuroscience
  • Sleep Medicine
  • Developmental Pediatrics

Background:

  • Parents of children with Neurodevelopmental Disabilities (NDDs) face unique challenges that can impact their well-being.
  • Sleep disturbances are a common concern for caregivers, yet comprehensive reviews on parental sleep outcomes in this population are lacking.

Purpose of the Study:

  • To systematically review existing literature on sleep quantity, quality, sleepiness, and fatigue in caregivers of children with NDDs.
  • To identify gaps in the current research regarding parental sleep in the context of NDDs.

Main Methods:

  • A systematic literature search was conducted between June and August 2016.
  • Included studies examined sleep outcomes in caregivers of children with NDDs.
  • Eligibility criteria were applied to 7,534 retrieved citations, with 33 studies meeting the criteria.

Main Results:

  • Most included studies (n=27) were cross-sectional and of poor or fair quality.
  • Parents of children with NDDs consistently reported significantly poorer subjective sleep quality compared to controls.
  • There is a notable lack of high-quality, comparative studies using objective sleep measures.

Conclusions:

  • The current body of research on parental sleep in NDD populations is limited by study quality and design.
  • Further high-quality research is essential to understand parental sleep experiences and inform intervention strategies.
  • Addressing parental sleep deficits is crucial for supporting families of children with NDDs.

Keywords:
family caregiverfatigueneurodevelopmental disabilitiesparentssleep outcomessleepinesssystematic review

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