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Participants' decision to enroll in cohort studies with biobanks: quantitative insights from two German studies
Hélène Nobile1,2, Pascal Borry2, Tobias Pischon3
1Department of Epidemiology, German Institute for Human Nutrition Potsdam-Rehbrücke, Nuthetal, Germany.
Aim:
To understand participants' actual motivations to enroll in cohort studies with biobanks.
Methods:
Participants of two such studies currently ongoing in Germany were invited to fill in a questionnaire about their decision to enroll.
Results:
From the 623 questionnaires completed, contributing to scientific knowledge appeared as a main motive for enrollment, followed by learning about personal health status and receiving personal medical advice.
Conclusion:
Motivating participation as a way to contribute to the common good rather than as a way to obtain personal benefits appears to be particularly appropriate to ensure participants' long-term commitment and should therefore be further investigated in this setting.