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Caring for a Dying Partner: The Male Experience
Rebecca Judd1, Helen Guy2, Ruth A Howard3
11 Rowans Hospice, Hampshire, United Kingdom.
Journal of Palliative Care
|May 15, 2018
Summary
Men caring for a dying spouse often feel confused about their role and hesitate to seek help, viewing it as a last resort. Support is crucial to destigmatize male caregiving and encourage self-care.
Area of Science:
- Gerontology
- Sociology
- Psychology
Background:
- End-of-life caregiving is an emotive experience with limited research on male partners.
- Men are less likely than women to seek psychological or emotional support for themselves during caregiving.
Purpose of the Study:
- To explore the lived experiences of men caring for a dying spouse or partner.
- To investigate help-seeking behaviors among male end-of-life caregivers.
Main Methods:
- Eight semi-structured interviews were conducted with men caring for partners receiving palliative care.
- Interpretative phenomenological analysis was used to analyze verbatim interview transcripts.
Main Results:
- Three themes emerged: "Illness Questions Everything," "Constructing the Caring Role," and "Help-Seeking at the Limit."
- Men constructed their caring role as a duty, often viewing self-help as incompatible or a last resort.
- Terminal illness can deepen or distance partnerships; caregivers need to find meaning in their role.
Conclusions:
- Men's caregiving identity is often tied to duty, potentially risking their own well-being.
- Destigmatizing male caregiving is essential for men to accept support and practice self-care.
- Supporting male caregivers is vital to address their emotional and psychological needs.
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